need to see a neurologist in an university hospital

1. Myasthenia gravis? has medications

2. Inherited neuromusculkar disease: no good medications

3. ALS? no medication

所有跟帖： 

• ALS ：（ -寒枝- ♀ (0 bytes) () 10/06/2015 postreply 07:11:31

• 没治，这病很残酷的。到死病人的脑袋都是清醒的，最后死于窒息。有人去荷兰安乐死。 -betadine- ♀ (0 bytes) () 10/06/2015 postreply 07:17:49

• 没治, 等死的病,一般是交叉遗传 -桃花好运- ♀ (71 bytes) () 10/06/2015 postreply 07:31:22

• 唉！他俩孩子都是女儿！ -寒枝- ♀ (0 bytes) () 10/06/2015 postreply 07:38:13

• 中医一般对功能性的病变效果好。像这种器质性的疾病，中医也无回天之术。当然想试一下也无妨。 -betadine- ♀ (0 bytes) () 10/06/2015 postreply 07:59:20

• 嗯，总觉得坐着等死是很残酷的事情，希望有奇迹发生…… -寒枝- ♀ (0 bytes) () 10/06/2015 postreply 08:09:46

• too early to tell. -医者意也- ♂ (0 bytes) () 10/06/2015 postreply 17:28:14

• only 3% of the ALS is inherited. -Tianyazi- ♂ (0 bytes) () 10/06/2015 postreply 10:58:31