it is a very expensive drug too. see xxx

来源: tianyazi 于 2013-04-09 15:36:37 [] [博客] [旧帖] [给我悄悄话] 阅读数 : (461 bytes)
回答: 替堂妹问神经内科专家：Pompe disease 由 tiger00 于 2013-04-09 13:57:38

Try to find a Neurologist in a Children Hospital in USA.

If the family is not billionare, may forget it.

Google "best children hospital", you will find the top children's hospital.

The tops are:

1. Boston Children's hospital
2. Children's Hospital in Phildelphia
3. Cincinnati Childdren's hospital
4. Johns Hopkins Hospotial in Baltimore, MD
5. Baylor in TX.

请您先登陆，再发跟帖！