治疗此病的新想法，就是不必把巨型黑痣全部切除。 这样可减少痛苦

加拿大Hospital for Sick Children最近的一篇文章谈到治疗此病的新想法，就是不必把巨型黑痣全部切除
加拿大Hospital for Sick Children是加拿大最好的儿童医院

另外，替您找了美国巨型黑痣supportgroup的网站。 你或许可以打电话给他们。 http://www.nevus.org/what-is-a-large-cmn_id554.html

Plast Reconstr Surg. 2014 Feb;133(2):367-76. doi: 10.1097/01.prs.0000436852.32527.8a.
The shifting paradigm in the management of giant congenital melanocytic nevi: review and clinical applications.
Arad E1, Zuker RM.
Author information

1Toronto, Ontario, Canada Division of Plastic Surgery, Hospital for Sick Children, and the Department of Surgery, University of Toronto.

Erratum in

Plast Reconstr Surg. 2014 May;133(5):1312.

Abstract
SUMMARY:

Congenital melanocytic nevi remain a subject of controversy with respect to risk of malignant transformation and recommended management. Recent studies indicate a lower malignant risk (0.7 to 2.9 percent) than had previously been estimated. Surgery has not been proven to reduce malignant risk or improve quality of life, and may result in undesirable aesthetic and functional outcomes. In this article, the authors review key controversial issues in the management of congenital melanocytic nevi and re-evaluate indications for surgical treatment. An updated review of controversial topics in the management of congenital melanocytic nevi is presented, and clinical applications are demonstrated through clinical cases. Updates regarding the risks and outcomes of congenital melanocytic nevi patients open a renewed debate with respect to the indications for surgery as well as the extent of surgery that may be suitable. Treatment should be tailored to achieve optimal aesthetic results whereby complete nevus excision is not the goal. As such, nonsurgical management and incomplete nevus excision should be integrated as legitimate parts of any treatment algorithm.
Comment in

Reply: the shifting paradigm in the management of giant congenital melanocytic nevi: review and clinical applications. [Plast Reconstr Surg. 2014]
The shifting paradigm in the management of giant congenital melanocytic nevi: review and clinical applications. [Plast Reconstr Surg. 2014]

PMID:
24469170
[PubMed - indexed for MEDLINE]