Thanks. Here are my thoughts, not necessarily professional advvices.
I do think you need a working central line or a port-a-cath type of device for medication delivery. Chemos are bad for peripheral veins and 100% thrombosed. Central lines are put in by nurses, surgeons, and interventional radiologists. I trust radiologists because they do it under imaging guidance so it is fast and accurate, has a less rate of infection or other complicastions (they have been doing this for decades without problems. It is only recently the RNs or PAs and surgeons started this, well, for economical reasons). So it definately worth shopping around to have it put in.
In terms of how to let your voice heared by the original oncologist, I have seen people doing the following if there is literatures support your idea. Leave or mail print-out materials with important information highlighted to the nurses and secretaries, in an envelope, clearly marked for attention of your oncologist. Do not leave your name on it. Then later, mention that you've heared that xxxxx. If someone can help you, you can leave those print-outs in his/her department EVERYWHERE so everybody knows about it after a while.
Hope that helps. I would pursue PICC lines and chest ports. Best of luck!
I do think you need a working central line or a port-a-cath type of device for medication delivery. Chemos are bad for peripheral veins and 100% thrombosed. Central lines are put in by nurses, surgeons, and interventional radiologists. I trust radiologists because they do it under imaging guidance so it is fast and accurate, has a less rate of infection or other complicastions (they have been doing this for decades without problems. It is only recently the RNs or PAs and surgeons started this, well, for economical reasons). So it definately worth shopping around to have it put in.
In terms of how to let your voice heared by the original oncologist, I have seen people doing the following if there is literatures support your idea. Leave or mail print-out materials with important information highlighted to the nurses and secretaries, in an envelope, clearly marked for attention of your oncologist. Do not leave your name on it. Then later, mention that you've heared that xxxxx. If someone can help you, you can leave those print-outs in his/her department EVERYWHERE so everybody knows about it after a while.
Hope that helps. I would pursue PICC lines and chest ports. Best of luck!