不要着急。DKA虽然是重症，但是治疗方法已经非常成熟。

1. When will be safe to bring her back to the US (hospitalization is China is very expensive)? How long approximately will it take for her blood sugar to be stabilized?

正如你后面一句说的，直到血糖稳定后。DKA（酮症酸中毒）很好治，但是是重症，因为不积极治疗可以导致严重酸碱/电解质紊乱，所以在美国这边，绝大多数情况是进ICU（重症监护病房）治疗。

多长时间因人而异，取决于身体对治疗的反应，大多不会超过1-2周。

2. She is only 9-years-old. I worry about she forgets blood sugar monitoring, injecting insulin or have sugar pill whenever she needs and may endanger her life. Can a 9-years-old take care of her diabetes? What can I do? How about when she is at school?

在DKA期间，这是医生和护士的责任，决不是病人的责任，更不是一个9岁病孩的责任。我不知道中国（或者你女儿所在医院）的具体情况如何，让一个未成年人照顾自己的疾病，而且是重病，是极其不负责任的行为。I型糖尿病的唯一治疗方法是注射胰岛素，目前还没有口服药物，这更不能让小孩子来完成。

 

3. What is the best way for a parent to care a child diabetic patient to ensure her a healthy and happy life? Does pump help? Or is there an ultimate way to solve the problem, such as organ transplant?

目前最好的办法是胰岛素注射。胰岛素泵是一个非常好的方法，你可以在你女儿病情稳定后向医生咨询，看她是否适合用胰岛素泵。至于胰岛B细胞/胰岛干细胞移植似乎还在实验/起步阶段，感觉上并不成熟。

  

4. Can a girl with diabetes have normal life, eventually get married and have normal babies? What would be different as a diabetic patient? Can she still have normal activities, exercises and go anywhere for travel?

可以，可以，可以。可以，可以。

对于I型糖尿病病人，一般发病年龄都较低，所以病程往往是几十年。但是I型糖尿病病人可以过和正常人完全一样的生活。关键的关键是关注自己的身体，就象每天刷牙洗脸一样坚持查血糖，注射胰岛素。如果平时不注意，血糖控制不理想，少则10年，多则20-30年各种各样的并发症会接踵而至。

  

5. We have other children, both older and younger than her. How could we change our family schedule to help her, both physically and emotionally? Do we need to change family diet to a specific diabetic diet?

你的这个观点非常正确：需要同时在生理和心理上关心和爱护病孩。你可以考虑参加一个“pediatric diabetes”的support group。相信里面的家长会有很多心得。 

 

6. What did we do wrong? Why she got diabetes so early in her life? Her other siblings are all healthy.

Nothing。I型糖尿病的发病原因至今不明，相当多的病例是在感冒症状之后，有一种假说是“病毒感染”后，刺激自身免疫细胞攻击胰岛细胞导致的。

 

 

所有跟帖： 

• 才发现她已经进食了，那说明已经从ICU转到普通病房了。 -恶俗老狼- ♂ (351 bytes) () 11/14/2011 postreply 19:29:00