急问 (儿童糖尿病I):9岁女儿酮症酸中毒 Diabetic Ketoacidosis (DKA)住院。 如何应

来源: momof4 2011-11-14 18:35:27 [] [旧帖] [给我悄悄话] 本文已被阅读: 次 (6459 bytes)
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急问 (儿童糖尿病I):9岁女儿酮症酸中毒 Diabetic Ketoacidosis (DKA)住院。 如何应对? 怎样照顾I型糖尿病儿童?


Sorry, I am slow in Chinese input. Please allow me to type in English.


My 9-years-old daughter visited China three weeks ago and had cold/flu symptoms, such as vomiting, no appetite and lethargic. We took her to see doctors in hospital in China twice and she was treated as stomach upset and normal cold. The hospital even give her 葡萄糖点滴 (dont know the English for it).


The third time we sent her to hospital, the hospital did blood and urine lab, both showed high sugar levels. Ketone was found in her urine. Her blood sugar lever was 38 (the normal range should be under 6). She was diagnosed with DKA 酮症酸中毒.


Now, she was further diagnosed with Type I Diabetes. We did not have a family history of diabetes and my daughter is in China. Now, she needs to monitor her blood sugar more than 10 times a day and have 4 insulin injections. Her blood sugar lever changes significantly before and after meal (6 to 8 before the meal and 13-16 after the meal).


My questions are:


1. When will be safe to bring her back to the US (hospitalization is China is very expensive)? How long approximately will it take for her blood sugar to be stabilized?


2. She is only 9-years-old. I worry about she forgets blood sugar monitoring, injecting insulin or have sugar pill whenever she needs and may endanger her life. Can a 9-years-old take care of her diabetes? What can I do? How about when she is at school?


3. What is the best way for a parent to care a child diabetic patient to ensure her a healthy and happy life? Does pump help? Or is there an ultimate way to solve the problem, such as organ transplant?


4. Can a girl with diabetes have normal life, eventually get married and have normal babies? What would be different as a diabetic patient? Can she still have normal activities, exercises and go anywhere for travel?


5. We have other children, both older and younger than her. How could we change our family schedule to help her, both physically and emotionally? Do we need to change family diet to a specific diabetic diet?


 


6. What did we do wrong? Why she got diabetes so early in her life? Her other siblings are all healthy.


Just feel overwhelmed and stressed out. If you are a doctor, a diabetic patient or know someone that has the similar experience, please share the insights with us. If you are a fellow parent, please give me some advice. Thanks!!


 

所有跟帖: 

医疗意见听医生的,关于一型糖尿病,我有一个朋友是十来岁的时候患上的 -viewfinder- 给 viewfinder 发送悄悄话 viewfinder 的博客首页 (489 bytes) () 11/14/2011 postreply 19:04:07

网上有说法10岁左右最容易患一型糖尿病 -dudaan- 给 dudaan 发送悄悄话 dudaan 的博客首页 (57 bytes) () 11/15/2011 postreply 10:57:07

1型基本都是打胰岛素了。在美国可以搞个磅,随时按照你血糖的需求来自动调整胰岛素剂量。 -云中飞燕- 给 云中飞燕 发送悄悄话 云中飞燕 的博客首页 (0 bytes) () 11/14/2011 postreply 19:04:26

-dudaan- 给 dudaan 发送悄悄话 dudaan 的博客首页 (0 bytes) () 11/15/2011 postreply 06:08:15

不要着急。DKA虽然是重症,但是治疗方法已经非常成熟。 -恶俗老狼- 给 恶俗老狼 发送悄悄话 恶俗老狼 的博客首页 (14473 bytes) () 11/14/2011 postreply 19:18:44

才发现她已经进食了,那说明已经从ICU转到普通病房了。 -恶俗老狼- 给 恶俗老狼 发送悄悄话 恶俗老狼 的博客首页 (351 bytes) () 11/14/2011 postreply 19:29:00

除胰岛素/泵外,I 型糖尿病治疗新进展包括:胰岛细胞移植,胰腺移植,干细胞移植等等, -老道- 给 老道 发送悄悄话 (198 bytes) () 11/14/2011 postreply 19:45:48

老道要经常来屯里逛逛,给咱多普及些最新进展哟。 -恶俗老狼- 给 恶俗老狼 发送悄悄话 恶俗老狼 的博客首页 (26 bytes) () 11/14/2011 postreply 19:54:07

药物治疗上,近年来更加强调"tight control",就是把血糖控制在更接近于正常的范围之内, -老道- 给 老道 发送悄悄话 (89 bytes) () 11/14/2011 postreply 20:13:44

谢谢大家!!! -momof4- 给 momof4 发送悄悄话 momof4 的博客首页 (35 bytes) () 11/14/2011 postreply 22:25:58

糖尿病不吃肉, 多吃素菜和粗粮, 自然就好. -我的天- 给 我的天 发送悄悄话 (0 bytes) () 11/15/2011 postreply 07:31:11

几点看法 -dudaan- 给 dudaan 发送悄悄话 dudaan 的博客首页 (483 bytes) () 11/15/2011 postreply 10:36:05

我也是几年前得的1型。 希望我的经历对你有帮助。 -dou2mi- 给 dou2mi 发送悄悄话 dou2mi 的博客首页 (7384 bytes) () 11/15/2011 postreply 10:58:18

祝福您的孩子。愿她早日康复。多做善事多念药师佛名号及药师经,将功德回向给孩子。 -宛然- 给 宛然 发送悄悄话 宛然 的博客首页 (0 bytes) () 11/15/2011 postreply 11:39:53

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