前段时间答应这里一位妈妈说一下我女儿crossed eyes手术的事情.
妮妮11个半月的时候做了第一次crossed eye surgery. 全麻, 手术时间45分钟, 因为她小，就排在第一个手术. 早上不到7点到儿童医院，8点手术，不到9点医生出来告诉我们everything went beautifully.术后观察2个小时discharge.我们到家刚好11点半.
妮妮一生下来我们就发现她对眼的问题.说实话, 我和妮妮姥姥没在意, 觉得孩子长大一些就好了. 妮爸呢, 就觉得这不是件小事, 他老说自己有两个同事的眼睛not in alignment,就怕自己宝贝女儿也这样. 妮妮三个月的时候去看家庭医生, 我们GP碰巧跟妮爸高中就认识, 他对小家伙非常上心, 就告诉我们, 三个月以后如果我们觉得这还是一个concern, 一定要告诉他, 接下来的一个月,我们觉得妮妮对眼没有任何好转, 刚好又因为其他事情跑到GP那里, 就跟他又提了一下. GP当场觉得,不等了,转专科.
(唐僧一下，好的医生太太重要了！！！！！我家GP那叫一帅那叫一nice.当初需要换OB,同事推荐她的医生给我, 说“ He is a family doctor but he can deliver babies if you are low risk pregnancy.”接着就开始告诉我这位医生多nice,多帅,我还挺不以为然.）
妮妮6个月大的时候,我们第一次见了pediatric Ophthalmologist, Dr.B -- 这里需要特别强调的，crossed eyes一定要看Pediatric Ophthalmologist. Dr. B一看，就指出这是infantile esotropia. 初步检查后，他告诉我们妮妮的情况是需要手术的.至于手术时间,是早比晚好. 他自己会给小baby high priority，争取在一岁左右做手术. 我们当然要问why, --“Both her eyes now have good vision. But she is only use one eye at a time. If we don’t treat it , one of her eye will end up really bad vision. That’s why I say we should treat it earlier rather than later.”
“可不可以不手术，用patch不行吗？” 因为我们在waiting room看到有孩子带patch, 就这样问.
“ Case by case. Patch will not work well for your daughter.” 就妮妮的情况，用校正的效果不会理想, 更大的问题是, patch用需要两三年的时间, 这期间还有有形成弱视的可能.而弱视一旦形成, 非常难纠正. Dr.B 当时也指出,有一半的孩子会需要第二次手术. 妮妮是内斜,第一次手术要把她眼球内部肌肉放出4-6个毫米了. 第二次手术要收紧眼球外部的肌肉. 如此精确的手术,完全靠医生steady hands和经验.
It was lots of information to take in for our first appointment. 医生也给开了一盒patch，告诉我们贴在crossed sight厉害的眼睛上,--Just to exercise the muscle.
眼科医生当天就给我们的家庭医生和妮妮的儿医打电话交流了初诊情况。GP后来告诉, “ He sound very caring and concerned. He called it a great catch. He has seen too many children missed the opportunities to be treated earlier with better results.”
妮妮姥姥那时候刚回加拿大，作为临床经验非常丰富的产科医生，她一开始是不太赞成的。我们用几天的时间把眼科医生的信息消化了一下, 决定听从医生建议, 准备等妮妮一岁时手术.后来我们又到Dr.B两次，主要是follow up.
妮妮手术前一周, 我们到儿童医院见麻醉师,那时候才知道, 儿童医院都是儿科麻醉师, “ we were trained to take care of little ones and I have spent my entire career in pediatric care.” 这让我们放心不少. 手术当天的情况开头已经说了. 回家后的当天她大半时间是睡觉, 麻醉后劲还在. 我们给了一天的baby Tylenol, 第二天发现有点diarrhea. 术后24小时到Dr.B那里, 征求他意见后就停了. 术后fussy了两天, 第三天就近乎往常了。术后第二周, 我们明显感觉小家伙的变化.“ she is now much happier and more engaging.”"Because she is now seeing with both eyes.” Dr. B pointed out. 至于第二次手术的时间, 我们还没有问Dr.B. 感觉是"need to wait and see how her eyes development go."
Children are our angles and we are their guards. As parents,
1. Do your homework and make EDUCATED decisions.
2.Find good doctors, and the right ones. I don’t care how long I have to wait; I want my child to be treated by the best doctors I can find.
3. 希望所有的宝宝都能健康快乐的长大.
4.Hats off to all medical professions who truly care about their patients. I was raised by one and happen to know a few more through my daughter.
上班时间用在线中文输入敲的。见谅。
